Our Congenital Diaphragmatic Hernia (CDH) Focus group is an active, collaborative group that has been using the Children’s Hospitals Neonatal Database (CHND) to observe outcomes for affected infants. There are over 25 individuals from participating centers that contribute to bi-monthly, web-conferencing calls and since 2014. The group has held over 70 meetings with participation from neonatal clinicians, pediatric surgeons, nursing, and neonatologists representing our children’s hospitals. This group has been exploring and has completed* a number of projects:
– Contemporary, multi-center description of short-term outcomes*
– Prediction of short-term outcomes*
– Growth velocity and its relationship with survival*
– Prevalence of and prediction of serious infections
– Clinical practices and variations in using extracorporeal support
– Iterative literature reviews/journal clubs*
– Planning presentations at national conferences*
– Exploring new collaborations
These projects take advantage of the CHND and unique data linkages with the Pediatric Health Information Systems to discover and observe clinical outcomes that intersect with resource utilization. For more information about participation, please contact firstname.lastname@example.org.
Gien J, Murthy K, Pallotto EK, Brozanski B, Chicoine L, Zaniletti I, Seabrook R, Keene S, Alapati D, Porta N, Rintoul N, Grover TR; Children’s Hospitals Neonatal Consortium CDH Study Group. Short-term weight gain velocity in infants with congential diaphragmatic hernia (CDH). Early Hum Dev. 2017 Mar-Apr; 106-107:7-12. doi: 10.1016/j.earlhumdev.2017.01.010. Epub 2017 Feb 6. PubMed PMID: 28178582.
Murthy K, Pallotto EK, Gien J, Brozanski BS, Porta NF, Zaniletti I, Keene S, Chicoine LG, Rintoul NE, Dykes FD, Asselin JM, Short BL, Padula MA, Durand DJ, Reber KM, Evans JR, Grover TR. Predicting death or extended length of stay in infants with congenital diaphragmatic hernia. J Perinatol. 2016 Aug;36(8):654-9. doi: 10.1038/jp.2016.26. Epub 2016 Mar 10. PubMed PMID: 26963428.
Grover TR, Murthy K, Brozanski B, Gien J, Rintoul N, Keene S, Najaf T, Chicoine L, Porta N, Zaniletti I, Pallotto EK; Children’s Hospitals Neonatal Consortium. Short-term outcomes and medical and surgical interventions in infants with congenital diaphragmatic hernia. Am J Perinatol. 2015 Sep;32(11):1038-44. doi: 10.1055/s-0035-1548729. Epub 2015 Mar 31. PubMed PMID: 25825963.